Graeme’s Run, February 9, 2019: Fighting Congenital Heart Defects: America’s #1 birth defects

From Houston Mom, Stephanie:

On December 18, 2012 our son, Graeme, was born. We had an emergency delivery after the doctor detected his heart rate in the 70s at my 34 week appointment. He was diagnosed with Double Outlet Right Ventricle, Malposed Great Vessels, VSD, Coarctation of the Aorta, Straddling Mitral Valve, Aortic Valve Hypoplasia, and Complete Heart Block.

He was rushed to the Texas Medical Center where he underwent a coarctation repair, a pacemaker was placed, and a Pulmonary Artery band was placed. With 2 surgeries under his belt our little trooper was released from the hospital after 44 days. After living a happy and for the most part normal life, we lost our sweet angel on May 3, 2015 at 2 1/2 years old. We were devastated, and still are in complete shock, as we are left to try to find our new normal and purpose.

We have decided to put our energy into raising awareness and funds for Congenital Heart Defect (CHD) research. We knew nothing about heart defects before Graeme and were shocked to learn:

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  • Congenital heart defects are America’s and every country’s #1 birth defect. Nearly 1 of every 100 babies is born with a CHD.
  • Congenital heart defects are the #1 cause of birth defect related deaths.
  • Each year approximately 40,000 babies are born in the United States with a congenital heart defect. Thousands of them will not reach their first birthday and thousands more die before they reach adulthood.
  • Each year over 1,000,000 babies are born worldwide with a congenital heart defect.

The Children’s Heart Foundation (CHF) has contributed an astounding $10.6 million toward revolutionary congenital heart defect research studies. As the country’s leading organization solely committed to CHD research funding, CHF dedicates itself to bringing health, hope and happiness to children and families impacted by a CHD. We want to continue to be a part of that fundraising in Graeme’s honor.

As we have grown, our grief has shifted, and the support side of the congenital heart defect world has become important to us. It is our honor to also raise funds for a 2nd amazing foundation called Hayden’s Heart. Shortly after I lost Graeme, I was introduced to a fellow heart mom named Ady. Her mission is to raise CHD awareness and to keep her son Hayden’s Memory alive by helping families affected by CHD.

Hayden’s Heart hosts retreats to provide a safe, tranquil space for bereaved mothers, couples, children and families to heal and connect together through a variety of methods and activities offered to assist in the healing process. Ady wants to host more of these events and for these families to have their own safe space and instead of renting facilities. I am so proud of her and grateful to support her through Graeme’s name. Our two boys are making miracles happen for other children and their parents. Those sweet faces continue to make us proud every minute.

We were able to raise over $63,000 for The Children’s Heart Foundation in 2018.

Our 4th Annual Graeme’s Run is set for February 9, 2019 (February is heart awareness month) and will be full of fun activities for everyone! We will start with a 5K and a 1 mile family walk in Old Katy starting and ending at No Label Brewery.

Following the run/walk we will have:

  • No Label serving free beer
  • Food
  • Righteous Cause Band
  • Chris Boise Band
  • All Around Bounce will have several bounce houses set up
  • Face Painting
  • Balloon Animals and more!

**100% of registration fees will go to The Children’s Heart Foundation and 100% of raffle sales will go to Hayden’s Heart.
We would love for you to be a part of this great event.

Thank you for reading our story and helping us honor our precious son,
The McDaniel Family (Robby, Stephanie, Mason and Juliet)

To find out more visit: www.graemessuperheroes.org
phone: 832-221-9116
email: graemessuperheroes@gmail.com
Facebook: Graeme’s Superheroes


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